One thing you soon learn about living with FM and ME, is that you can no longer make plans. Nothing from food to social events, can be planned in advance.
I've learnt to wait and see how I feel on the day. Too many times I've made plans only to find I can't open my eyes, yet alone get out of bed. I can't even promise to make medical appointments, I just book them and hope for the best. Thankfully I have a very understanding doctor.
The worst thing for me is when my family arrange to come and stay with us, that may seem strange to you, but the last couple of times they have visited, I've been stuck in bed unable to move and missed their entire visit. I love spending time with them so you can imagine how bad that makes me feel.
I'm luckier than a lot of people, in that my family understand fairly well and make allowances for me, as does my father in law, there are many sufferers out there who are much less fortunate.
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